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An hEDS diagnosis must mean the end of my active lifestyle…or so I thought. When I was diagnosed with hypermobile Ehlers-Danlos syndrome, most of the information presented was focused on what *not* to do. Don’t run, don’t work out too hard, don’t lift overhead. I was recommended not to do anything that could stress my already “fragile” joints. My muscles were deconditioned after recovering from 8 major surgeries to stabilize my knees, hips, and ankles. Don’t stress my joints? Simply standing up
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In this video I will go through the diagnostic criteria for h-EDS in the simplest and most easily digestible way I can. Many are suffering with the symptoms of Hypermobile Ehlers Danlos Syndrome and being met with nothing but dismissal and medical gaslighting by their doctors. Some of the things people have told me their doctors have told them in an attempt to dismiss their concerns and daily battles with this disorder are deeply upsetting and often just down right medical neglect. I hope this v
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