For My youngest Daughter Evey link matters KBG syndrome is a rare genetic disease that is the result of a mutation in the ANKRD11 gene at location 16q24.3. Only about a hundred known cases have been reported, although it is expected to be under-reported. The syndrome was first described by Herrmann in 1975 in three distinct families. Herrmann proposed the name KBG syndrome after the initials of affected families' last names, which aren't known to the general public.#kbg #kbgsyndrome #everylinkma
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For My youngest Daughter Evey link matters KBG syndrome is a rare genetic disease that is the result of a mutation in the ANKRD11 gene at location 16q24.3. Only about a hundred known cases have been reported, although it is expected to be under-reported. The syndrome was first described by Herrmann in 1975 in three distinct families. Herrmann proposed the name KBG syndrome after the initials of affected families' last names, which aren't known to the general public.#kbg #kbgsyndrome #everylinkma
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Meet Pia Jones! She was born with KBG syndrome and her mother says navigating access for her in Tennessee hasn’t been easy. The Tennessee Disability Coalition says ⅓ of the population in Tennessee has a disability and they recently released a scorecard scoring Tennessee a “D” overall. “It’s a message to our legislature that they look in the mirror and realize that this great is unacceptable,” says Jeff Strand with the coalition. | Jordan Karnbach Press
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